Tuesday, March 04, 2008

Digg: "I've Got Measles! Thanks Mom!"

This is mostly a quickie entry, since my attention is pretty much tied up with other things... But, while wandering from one online thing to the next, I managed to check the recent activity of my friends at Digg and saw that InvisibleK had pointed out a worthwhile one: I've Got Measles! Thanks Mom!

As the page says:

"Please digg so more parents will read that the link to autism has been debunked.  Measles is highly contagious and can cause brain swelling, pneumonia, and even death."

I already know at least one person that has gotten another one of the Dread Diseases (whooping cough)... Sad to say, many people don't seem to realize how vaccines actually function in a community, that it's not just a matter of one person being protected or not. Ideally, it works like horses or wagons circling together during an attack: the large majority of individuals that are healthy get vaccinated in order to form a protective ring around the babies, elderly, or immune-disabled that can't safely use the shots to defend themselves.  If there aren't enough healthy inoculated people to form that crucial barrier, the diseases can start attacking those vulnerable people, getting the chance to mutate into a form the vaccine can't handle -- potentially causing a real epidemic.

The other problem, of course, is that most people don't have the medical experience to have a clue what they're risking.  As Elizabeth of Screw Bronze put it, speaking about her own past as a non-disabled citizen, "getting the flu or cold was the worst" the typical person fears.  They don't think in terms of not being able to get out of bed for weeks, crying secretly out of the fear that perhaps they won't be alive 24 or 12 hours from now, being in the hell that many hospital wards can be. They see things like autism as the pinnacle of horror expressly because they haven't seen what real nightmares -- like the one Elizabeth described in "Fragile" yesterday -- are like.

Relatedly, I read Meet The Austins by Madeline L'Engle this past week, and was surprised to see how casually she treated the subject of all the children coming down with measles. There was no sense of the disease being dangerous or even particularly horrible; she portrayed it as essentially being on par with an average case of the flu.  Odd for a disease that killed so many, even though it was in a young-adult novel; then again, it might say a lot.  Many older adults were told as kids that a deceased child had moved away or stayed asleep forever -- combine that with sterilized depictions of major illnesses in media, and the lack of terror at the big diseases makes a lot more sense.

(First post with the newer version of Windows Live Writer! If nothing bad happens in my life in the near future, then hopefully having WLW will get me blogging again;  like it a lot more than the web client or Semagic.)

Saturday, January 05, 2008

Urgent help request by mother of autistic boy being abused at his school

I logged into Gmail a little bit ago, and found a very disturbing message someone had sent to me through the comments at a public LJ comm entry. I have no idea who might be able to help her, but the woman & her boy clearly need some kind of help -- this is just too fucked-up wrong.  Here it is, pasted directly from her comment (subject links back to it):

Subject: I Need Help with my sons abuse by teachers
My mildly autistic son is being abused by his school teachers they throw him face down and leave marks on him and I don"t Kn ow what to do.... the school Denies they are doing any thing wrong... Any one Can contact Me by mail till I get a phone (Amy Crowe 514 west main Ashland Wi 54806)Please Help!!!


Please do forward to anyone (or any group) you think might be able to help them.  I've been out of the advocacy arena way too long to have any clue where to even start...everyone I haven't kept in touch with via LJ appears to currently have mostly-dormant blogs and/or no updated contact info. The best I can think of otherwise is a teacher & advocate way over in the UK (Mike Stanton) that might know someone over here in the USA.

[This would be cross-posted automatically to IJ, but I haven't learned how to make Flock do that, and Semagic won't stop crashing.]

Tuesday, July 24, 2007

This is why I hated having SA take over LJ.

First, a note to Ballastexistenz: I'm working on the "8 Things" but a new bit of havoc has hit my life so I forgot temporarily. (I also am playing with the idea of including pics, as you did. I really enjoy using visuals, and it was a brilliant addition to the game.)
--

So, just recently, I started using LiveJournal daily again -- both writing, reading my oversized "friends list" and commenting. So of course NOW the system goes down.

How it's being handled is really irritating, too. If you go to LiveJournal, the link for details about the outage points to the status page for SixApart, the company that bought them out a few years ago. SA's site clearly states "we are working to bring TypePad back online safely as soon as possible" (emphasis mine), followed by a series of details as each individual aspect of the site was restored; now it says that they're busy figuring out why their backup supplies failed. The only thing mentioned about LJ or its sibling Vox is that they're completely down. >:-p

Having been through a lot of LJ outages, I know from experience that they can (and used to) bring the site in read-only mode somewhat quickly after power was restored, then let one server of users at a time start posting, and finally rotate server freezes (no posting, no commenting) while bringing comments fully up. There were some shockingly long downtimes, but generally power outages wasn't the cause, and their site (or their .org variant) gave updates as to what was going on.

It sounds like when SA bought LJ, they should have kept more of the employees, or at least have a better backup team for emergencies. Power's been up for four hours already, twits, it's time to show some results...

Incidentally, for all of the people that are so far not there yet: if you want to be part of the autistic or disabled community (which includes partners, friends, and relatives) on a more personal level, LJ is a good place to go. The site lets people opt to have only chosen friends (one, groups, all) see posts, which lends to a more intimate atmosphere.